Victoria | Elizabeth | Alex
Elizabeth's Story
written by mom Rebecca
I was 18 years old when I had Elizabeth. I
began having problems with the pregnancy and Elizabeth ended up coming into
this world 2 months early on November 6th, 1992. Well I suppose she was just
as impatient then as she is now :o)!! Being 2 months premature you would
think she would have a lot of problems... not her, she was a trooper even
then. She was 3 lbs. 3 oz.
and 16 3/4 long. After gaining a little more weight, she came home. They
told us that since she was two months early, to expect her to be two months
behind. But when she was about 10 months, I knew something was not right. I
fought with her doctor at that time that something was wrong, but each time,
the doctor said that she was the doctor and I was not, and that she knew
what she was talking about. During all of this Elizabeth began having
seizures. When she was about 15 months old I was finally able to find a
place that could help me get help for her.
Finally, after many head banging arguments with her first doctor about her
condition we were finally able to find a doctor that had agreed with us that
she had Cerebral Palsy. Elizabeth is unable to walk however she is getting
better at helping with transfers. She needs some help sitting up...although
she can do it by herself if she wants to. We are now dealing with the
teenage mood swings! We began homeschooling a year and a half ago when the
public school wasn’t making her do her work, but instead letting her play.
It has been hard but well worth it.
Elizabeth has had several surgeries. The first was to straighten her eyes
which were crossed pretty bad. The worst surgery had to be fixing her hips
because they were coming out of the sockets due to the spasticity in her
legs. This surgery was done by breaking the bones right below the ball of
the hip, repositioning it into the socket and using metal plates and pins to
put the two parts of the bone back together. This was done on both sides. At
the same time, she had her hamstrings lengthen, and her adductor muscles
clipped. The recovery time for this can take anywhere from a few months to
even a year. She would then have another surgery to remove the hardware. She
had the right hip done again on August 10th, 2001 because we found that the
socket was not shaped right which was allowing that hip to come out of
socket again. They also had to fix the socket which meant another incision
in the VERY lower part of her right abdomen area. They had to put two screws
through the socket. She had to wear a cast from her hips all the way down
both legs for 7 weeks. In the summer of 2004 Elizabeth also had her ankles
lined out as they were turning out bad.
Elizabeth is a really happy child and is always making people smile...by
just being so sweet to being funny. She is a talker let me tell you! She
could talk the stripes right off a zebra! She received a wish from the Make
A Wish Foundation and in March 2002 we went to Florida and stayed at Give
Kids The World and seen a lot of the major Orlando Parks (Disney, Universal,
and Sea World). We also got to go to Cocoa Beach and see the ocean for the
first time.
Our road has been a long and bumpy one, but we have always made it through.
Her biological father dropped out of her life about 8 years ago.
That is fine as he was never there for her anyway. I met another guy who has
been a wonderful dad to her for 10 years now. If anyone ever asked who her
dad is... I tell them it's my husband, because he is everything a
father/daddy should be. Elizabeth even calls him dad!
Abilities:
See: Yes.
Hear: Yes.
Talk: Yes.
Walk: No, although she can stand enough to help with transferring.
Read: Yes, but on a 1st-2nd grade level.
Use hands: Yes.
Siblings:
none
Child's Interests:
Elizabeth loves all Music!!! She LOVES Charlotte Church and Elvis!! She
likes watching the Disney and Noggin stations. She just started scrapbooking.
She is a very devoted Christian.
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