"Angel" Christi |
Chloe | Hillary
Hillary's Story
written by mom Cindy
Hillary was born on Christmas Day. She has
always loved sharing Jesus' birthday! Plus, everyone remembers her birthday.
And, no, her birthday does not get lost in the Christmas rush- we make sure
of that! We always celebrate her birthday separately.
At the age of 10, we began to notice Hillary being fatigued; however, she
was playing soccer and was very active. She also had low grade fevers on and
off for a couple of weeks. Her visit to the pediatrician sent us straight to
the emergency room. There, we were absolutely shocked and in disbelief to
learn that Hillary had leukemia. She had been going to school, playing
soccer, involved in church, and more. We had no clue she was so sick.
On November 7th, 2001, Hillary was diagnosed with Acute Lymphoblastic
Leukemia. That day had started off as a "normal" day of school and work but
ended by being the beginning of almost 2½
years of chemotherapy. Hillary missed almost all of her 5th grade year and I
(her mother) resigned my teaching job in order to take care of her.
On the day of Hillary's diagnosis, she was admitted to the hospital, had
surgery the next day for placement of a port-a-cath for her to get her IV
treatments, and aggressive chemotherapy began on the 3rd day. Over the first
year of treatment, she was hospitalized 8 times and had 8 blood
transfusions. (Thank you so much to all of you who give blood. My daughter
is alive because people we don't even know took the time and effort to give.
You'll just never know whose life you can save when you donate blood.)
The intense treatments Hillary had over the first 9 months made her very
sick and weak, but she played hard whenever she felt good. We spent her
"good" days playing a lot of board games and putting together 500+ piece
puzzles. Usually there was only maybe an hour or so in which she had enough
energy to do so. Although those days of intense treatment were rough, our
family created an incredibly tighter bond than we had before and a bond that
I think can only happen when families endure such hardships as we have.
Hillary lost all of her hair twice, but she held her bald head high. She was
not ashamed of not having hair and often went without a hat. It is amazing
at the style and grace in which she endured throughout her treatment.
After 2 years and 4 months of chemotherapy, Hillary FINISHED her treatment
in February 2004! We had a BIG off-chemo party for Hillary. We had a giant
Moonwalk, hay rides, face-painting, air-brush (temporary) tatoos, food and
more for family and friends! We are thrilled for Hillary to be off chemo!
Her oncologist continues to see her monthly, and we just pray every month
that we will hear the words, "She looks great! Blood counts are good." It is
scary- we have seen the ugly side of cancer and hope and pray that Hillary
NEVER EVER faces it again! Our faith is strong and does not waver. We are
thankful for each day and continue to pray for good health.
We trust in God and believe she is healed of her cancer. Thank you God!
Hillary's bones are re-building and her muscle/joint aches and pain are less
now than in the past due to osteopenia from the chemotherapy. She will have
to have her heart checked every year or two from now on because damage to
the heart can show up later.
Most children with life-threatening illnesses are granted a wish. At the
time of Hillary's diagnosis, she was a BIG Crocodile Hunter (Steve Irwin)
fan and her wish was to go to The Australia Zoo and to meet him. Children's
Wish Foundation granted Hillary's wish to go to Australia and our family had
such a wonderful, incredible trip there in October of 2002. Although Hillary
did not get to meet Steve Irwin, everyone at The Australia Zoo gave Hillary
the royal treatment. She got to hold a koala, pet and feed a camel and
kangaroos, pet Harriet the giant (330 pounds and 172 years old) Galapagos
tortoise, walk a goat, name a lamb (Andrew), kiss a dingo, and the part she
loved the most was holding a Burmese python snake. It was huge! The trip was
definitely the trip of a lifetime. Our family is so thankful to all the
people who make it possible for wishes to come true for children who suffer
so much.
Thank you so much to those of you reading this and pray that our daughter is
healed forever!
"Trust in the Lord with all year heart and lean not on your own
understanding; in all your ways acknowledge, and He will make your paths
straight." Proverbs 3:5-6
Hillary's favorite scripture: "But grow in the grace and knowledge of our
Lord and Savior Jesus Christ. To Him be glory both now and forever! Amen." 2
Peter 3:18.
Abilities:
See: Yes.
Hear: Yes.
Talk: Yes.
Walk: Yes.
Read: Yes.
Use hands: Yes.
Siblings:
brother Samuel, age 13
Child's Interests:
Hillary participates in the Band at High School, plays Alto Saxophone, runs
sound at church , enjoys writing, plans to attend college (in a couple of
years) and major in music education. She going on a mission trip this summer
to Mexico with our church.
Sibling's Interests:
Samuel likes basketball and video games.
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