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Featured Kids 2008

   
 
 
 


Name: Tyler
Age: 15 years old
Date of Birth: May 12th, 1993
Date of Passing: April 18th, 2009
Main Diagnosis: Osteosarcoma

Grandma: Betty
Grandpa: Kenneth

Mailing Address:
"Angel" Tyler James B's Family
614 E. Hwy 50, #150
Clermont, FL
34711 - U.S.A.
(important note)


Siblings

 

NOTE FROM THE MACS STAFF

Tyler's story was written before he passed away. We will update his story as soon as we receive more information from his family.


Tyler's Story
written by grandma Betty

 

Tyler was born on May 12th, 1993 in Waconia, MN. At the age of 6 months, custody of him and his then 3 year old sister was transferred to his grandparents. He has lived with us since then.

Tyler has been a very active boy, participating in wrestling for 6 years and football for 3 years. In August, 2007, he was at a wrestling camp where he got thrown on the mat during practice and his ribs became very sore (so he thought). Around that time, he got a bulge on his left side, which he still thought was from wrestling. He went to a chiropractor for about 2 months. It did not get any better and became very painful. He had his ribs x-rayed in September and we were told nothing showed up.

After it did not get any better we took him back to the doctor in November and he had an MRI done. That is when they detected he had bone cancer, Osteosarcoma. He has a tumor on his back. On November 20, 2007 he was admitted to Children?s Hospital in Minneapolis, MN. He underwent CAT Scans, Bone Scans, Pet Scans, a Biopsy and had a double port implanted. Tyler has to be hospitalized to have chemo treatments. He started chemo on November 26, 2007 and was in the hospital for 10 days. He then returned on December 17 for the second round of chemo and was in the hospital for 8 days. He was supposed to get chemo for 3 consecutive weeks, and then have 2 weeks off and then 3 weeks of chemo again and so on.

Tyler has been getting very sick from the chemo and has had to spend much more time in the hospital. He has been very tired, has very little energy, gets sick and throws up a lot. He went into the hospital on February 4, 2008 for another round of chemo. That one really made him sick. He got very bad mouth sores and started running high fevers. He was not able to eat anything and had to be put on liquid foods through his IV?s. He has been in the hospital since then. His lung collapsed from the tumor pressing against it and fluid built up around it.

On February 17, 2008 he had surgery to remove the fluid that was building up around his lung. They were only able to remove about 1/3 of the fluid at that time because the surgeon did not want to have to move his lung around. He has been running fevers since then and the doctors think it is because of the fluid around his lung.

On February 26, 2008 he had surgery to remove the tumor. He had a tumor the size of a small football removed which weighed 2 pounds! He also had three ribs removed and a mesh put in to act as ribs. However after reviewing the tumor under the microscope, the doctors have determined that they did not get all of the cancer cells out. Tyler had more intense chemo and radiation.

On June 20, 2008, doctors discovered he had another tumor. He was sent to Rochester, MN for consults and had surgery there on July 9, 2008 to remove the tumor.

When scans were done on September 15, 2008, they discovered another tumor (#3), and when he had surgery to remove, doctors found a 4th tumor.

Tyler is very discouraged by all this and needs your prayers and support.

(..... to be continued .....)




Siblings:
sister Amanda, old
sister Alison, old


 


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