NOTE FROM THE MACS STAFF
Tyler's story
was written before he passed away. We will update his story as soon as we receive
more information from his family.
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Tyler's Story
written by grandma Betty |
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Tyler was born on May 12th, 1993 in
Waconia, MN. At the age of 6 months, custody of him and his then 3 year old
sister was transferred to his grandparents. He has lived with us since then.
Tyler has been a very active boy, participating in wrestling for 6 years and
football for 3 years. In August, 2007, he was at a wrestling camp where he
got thrown on the mat during practice and his ribs became very sore (so he
thought). Around that time, he got a bulge on his left side, which he still
thought was from wrestling. He went to a chiropractor for about 2 months. It
did not get any better and became very painful. He had his ribs x-rayed in
September and we were told nothing showed up.
After it did not get any better we took him back to the doctor in November
and he had an MRI done. That is when they detected he had bone cancer,
Osteosarcoma. He has a tumor on his back. On November 20, 2007 he was
admitted to Children?s Hospital in Minneapolis, MN. He underwent CAT Scans,
Bone Scans, Pet Scans, a Biopsy and had a double port implanted. Tyler has
to be hospitalized to have chemo treatments. He started chemo on November
26, 2007 and was in the hospital for 10 days. He then returned on December
17 for the second round of chemo and was in the hospital for 8 days. He was
supposed to get chemo for 3 consecutive weeks, and then have 2 weeks off and
then 3 weeks of chemo again and so on.
Tyler has been getting very sick from the chemo and has had to spend much
more time in the hospital. He has been very tired, has very little energy,
gets sick and throws up a lot. He went into the hospital on February 4, 2008
for another round of chemo. That one really made him sick. He got very bad
mouth sores and started running high fevers. He was not able to eat anything
and had to be put on liquid foods through his IV?s. He has been in the
hospital since then. His lung collapsed from the tumor pressing against it
and fluid built up around it.
On February 17, 2008 he had surgery to remove the fluid that was building up
around his lung. They were only able to remove about 1/3 of the fluid at
that time because the surgeon did not want to have to move his lung around.
He has been running fevers since then and the doctors think it is because of
the fluid around his lung.
On February 26, 2008 he had surgery to remove the tumor. He had a tumor the
size of a small football removed which weighed 2 pounds! He also had three
ribs removed and a mesh put in to act as ribs. However after reviewing the
tumor under the microscope, the doctors have determined that they did not
get all of the cancer cells out. Tyler had more intense chemo and
radiation.
On June 20, 2008, doctors discovered he had another tumor. He was sent to
Rochester, MN for consults and had surgery there on July 9, 2008 to remove
the tumor.
When scans were done on September 15, 2008, they discovered another tumor
(#3), and when he had surgery to remove, doctors found a 4th tumor.
Tyler is very discouraged by all this and needs your prayers and support.
(..... to be continued .....)